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Eighteen months ago, Ms Davies’ consultant – who specialises in HAE – suggested trialling a new medication at Southmead Hospital.
It involves an injection into the subcutaneous fat under the skin to deliver a drug into the bloodstream.
The drug works to lower the amount of a protein produced by the liver that causes the swelling.
Ms Davies was given the real drug, rather than a placebo.
She noticed an “immediate” difference and has only experienced one flare-up since starting the treatment.
“It’s amazing – it’s changed my life,” she said.
“It’s helped provide a space to do what I want without worrying.
“I feel genuinely very cared for and the research team at North Bristol NHS Trust has been really great.”
She added: “It’s changed my opinion of doing a trial.”
