“We got the news it had shrunk, which is obviously very good news, but the double-edged sword was that we are now not eligible for the drug,” said his dad Nick.
“If there is a change then we will be eligible but in the meantime we are sourcing it ourselves, but it costs about £700 per pill or it would be about £4,000 a month.”
Mr Hood, 58, and Ronnie’s mother Vicky, 50, took their son to be checked out in February 2023 after he said his neck was hurting and he had a tingling feeling in his fingers.
It was initially suspected the pain may be a result of his gaming, so he was sent for physiotherapy before eventually being sent for an urgent MRI roughly a year later.
